Registration
Specialty
International
scientific-practical symposium
Orphan Diseases Healthcare System: Experience, Challenges and Solutions
Шановні колеги! Наші заходи тимчасово перенесені! Всі ваші реєстрації зберігаються! Слідкуйте за анонсами! Бережіть себе! Слава Україні!🇺🇦
ORGANIZERS
Ministry of Health of Ukraine
National Children’s Specialized Hospital “Okhmatdyt”
All-Ukrainian Orphan Metabolic. Academy
All-Ukrainian Association of Specialists in Medical and Laboratory Genetics
Charitable Foundation Research Innovations in Medicine «RIMON»
LLC "Projects Inn"
Welcome to participate
  • neurologists
  • geneticists
  • specialists in medical laboratory genetics
  • hematologists
  • pediatricians
  • neonatologists
  • transplantologists
  • otorhinolaryngologists
  • rehabilitation specialists
GENERAL INFORMATION
Participation
FREE
Certificate
All participants will receive a certificate in accordance with the order of the Ministry of Health of Ukraine from 22.02.2019 № 446
Registration includes
  • participation in plenary sessions, workshops,
  • package of the Congress participant
  • obtaining a certificate
Languages
Ukrainian, English; translation of English lectures is provided. Reports in Russian are also possible
TOPICS
world experience of providing medical care to orphan diseases patients
diagnosis and treatment of orphan diseases in Ukraine
treatment of orphan patients in the context of health care reforms
experience of a multidisciplinary approach in the management of orphan patients
PROGRAM
ORGANIZING COMMITTEE
Zhovnir Volodymyr
Ivanova Tetyana
Chairman of the organizing committee
Gorovenko Nataliia
Members of the organizing committee
Olkhovych Nataliia
Members of the organizing committee
Pichkur Nataliia
Members of the organizing committee
Invited speakers

Ushurelu Nataliya
Moldova
Anna
Tylki-Szymańska
Poland
Gregory Pastores
Ireland
Ruxandra Jurcut
Romania
Laurent Servais
Belgium
Tanya
Collin-Histed
United Kindom
Sharipova
М.
Kazakhstan
Lali Margvelashvili
Georgia
Lapotentova Elena
Belarus
Kulesha Tetyana
Ukraine
Lysytsya Oleksandr
Ukraine
Golik Volodymyr
Ukraine
Samonenko Nataliia
Ukraine
Anoprienko Olena
Ukraine
Lomakina Tetyana
Ukraine
Shkurko Tetyana
Ukraine
Fedushka Galyna
Ukraine
Shklyarska Tetyana
Ukraine
PARTNERS
Благодійний Фонд Розвитку
Інновацій Медицини
Charitable Foundation