International
scientific-practical symposium
Orphan Diseases Healthcare System: Experience, Challenges and Solutions
Шановні колеги! Наші заходи тимчасово перенесені! Всі ваші реєстрації зберігаються! Слідкуйте за анонсами! Бережіть себе! Слава Україні!🇺🇦
ORGANIZERS
Ministry of Health of Ukraine
National Children’s Specialized Hospital “Okhmatdyt”
All-Ukrainian Orphan Metabolic. Academy
All-Ukrainian Association of Specialists in Medical and Laboratory Genetics
Charitable Foundation Research Innovations in Medicine «RIMON»
LLC "Projects Inn"
Welcome to participate
  • neurologists
  • geneticists
  • specialists in medical laboratory genetics
  • hematologists
  • pediatricians
  • neonatologists
  • transplantologists
  • otorhinolaryngologists
  • rehabilitation specialists
GENERAL INFORMATION
  • Participation
    FREE
  • Certificate
    All participants will receive a certificate in accordance with the order of the Ministry of Health of Ukraine from 22.02.2019 № 446
  • Registration includes
    • participation in plenary sessions, workshops,
    • package of the Congress participant
    • obtaining a certificate
  • Languages
    Ukrainian, English; translation of English lectures is provided. Reports in Russian are also possible
TOPICS
  • world experience of providing medical care to orphan diseases patients
  • diagnosis and treatment of orphan diseases in Ukraine
  • treatment of orphan patients in the context of health care reforms
  • experience of a multidisciplinary approach in the management of orphan patients
PROGRAM
ORGANIZING COMMITTEE
  • Zhovnir Volodymyr
  • Ivanova Tetyana
    Chairman of the organizing committee
  • Gorovenko Nataliia
    Members of the organizing committee
  • Olkhovych Nataliia
    Members of the organizing committee
  • Pichkur Nataliia
    Members of the organizing committee
Invited speakers

  • Ushurelu Nataliya
    Moldova
  • Anna
    Tylki-Szymańska
    Poland
  • Gregory Pastores
    Ireland
  • Ruxandra Jurcut
    Romania
  • Laurent Servais
    Belgium
  • Tanya
    Collin-Histed
    United Kindom
  • Sharipova
    М.
    Kazakhstan
  • Lali Margvelashvili
    Georgia
  • Lapotentova Elena
    Belarus
  • Kulesha Tetyana
    Ukraine
  • Lysytsya Oleksandr
    Ukraine
  • Golik Volodymyr
    Ukraine
  • Samonenko Nataliia
    Ukraine
  • Anoprienko Olena
    Ukraine
  • Lomakina Tetyana
    Ukraine
  • Shkurko Tetyana
    Ukraine
  • Fedushka Galyna
    Ukraine
  • Shklyarska Tetyana
    Ukraine
PARTNERS
Благодійний Фонд Розвитку
Інновацій Медицини
Charitable Foundation